Don Margolis blogged this story about the possibility of a new hope for a terrible disease. Because I correspond a lot with parents who are considering termination – knowing that their babies will be born with defects or syndromes, Epidermolysis Bullosa (EB) has been one of those conditions I’ve always dreaded discussing; it’s awful, a life of chronic pain, likely amputations, infections . . . and yet each person affected by EB (there are several kinds with differing severity) has a right to life, even if it is a difficult one. Now, there may be some hope for these children like Jake pictured above with his unaffected brother, Julian.
Read about this treatment – and pray. Imagine what a successful treatment means to this family, and all the families dealing with EB.