Don Margolis blogged this story about the possibility of a new hope for a terrible disease. Because I correspond a lot with parents who are considering termination – knowing that their babies will be born with defects or syndromes, Epidermolysis Bullosa (EB) has been one of those conditions I’ve always dreaded discussing; it’s awful, a life of chronic pain, likely amputations, infections . . . and yet each person affected by EB (there are several kinds with differing severity) has a right to life, even if it is a difficult one. Now, there may be some hope for these children like Jake pictured above with his unaffected brother, Julian.
Read about this treatment — and pray. Imagine what a successful treatment means to this family, and all the families dealing with EB.
Adult Stem Cell Awareness 
Monica,
You might direct those who are diagnosed with birth defects – especially serious ones – to Blessed Margaret of Castello. The Feb. 24 issue of Our Sunday Visitor had a list of saints related to suffering and Bl. Margaret was one for birth defects. Some more information on her from OSV: She’s from the 14th century and was born lame, blind, hunchbacked and a midget. Horrified at her condition, her parents imprisoned her near a chapel when she was 6 years old. At age 20, her family brought her to a shrine to pray for a cure. When none occurred, they abandoned her. Eventually Margaret became a lay Dominican and spent her remaining years in prayer — and suffering.
Peace,
CZ
Comment by Chelsea — March 8, 2008 @ 2:46 am |
What a hopeful story for a horrible condition. I will pray that this treatment truly is a cure for these suffering children.
Comment by Leticia — March 9, 2008 @ 3:20 am |
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